{"id":43,"date":"2021-05-28T20:57:34","date_gmt":"2021-05-28T19:57:34","guid":{"rendered":"https:\/\/leomosolyaert.hu\/?page_id=43"},"modified":"2021-12-13T19:26:00","modified_gmt":"2021-12-13T18:26:00","slug":"tunetek-fejlesztesek","status":"publish","type":"page","link":"https:\/\/leomosolyaert.hu\/en\/tunetek-fejlesztesek\/","title":{"rendered":"Symptoms and development"},"content":{"rendered":"
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This page is dedicated to a concise overview about Leo's treatments, but it's not at all complete. Who would want to read again and again about visits and checks? Even a normal child has more than enough visits to the doctor, a special kid has a lot more. All this effort is made to control his condition as much as possible and to provide the highest quality of life possible. In the end, they are but children who want to play and explore the world in their own ways. <\/p>\n\n\n\n

At first, everyone notices how different a special child is. We understand if people glance or stare at Leo, maybe even try to ask questions. We believe by answering the questions here most people are afraid to ask in person, everyone can focus on the most important thing: Leo is an adorable little boy, with his own unique personality.<\/strong><\/p>\n\n\n\n

Epilepsy: <\/strong>A legels\u0151 t\u00fcnet, az orvosok szem\u00e9ben \u0151 gyakran „csak” egy epilepszi\u00e1s kisfi\u00fa. Le\u00f3t 1 \u00f3r\u00e1s kor\u00e1ban vitt\u00e9k az intenz\u00edvre g\u00f6rcsgyan\u00fas tev\u00e9kenys\u00e9g miatt, aminek epilepszi\u00e1s volt\u00e1t csak 1 \u00e9ves kora k\u00f6r\u00fcl igazolt\u00e1k EEG-vel (ezzel a m\u00f3dszerrel vizsg\u00e1lj\u00e1k az agyi elektromos tev\u00e9kenys\u00e9get). Folyamatosan k\u00fcl\u00f6nb\u00f6z\u0151 gy\u00f3gyszerekkel pr\u00f3b\u00e1lkozunk, hogy rohammentess\u00e9 tegy\u00fck az \u00e1llapot\u00e1t. Hosszabb-r\u00f6videbb ideig siker\u00fcl. Minden egyes epilepszi\u00e1s g\u00f6rcs tov\u00e1bb ronthat az \u00e1llapot\u00e1n (mind az orvosi \u00e9rtelemben vett fejl\u0151d\u00e9si kil\u00e1t\u00e1sain, mind a mindennapi k\u00f6z\u00e9rzet\u00e9n), ez\u00e9rt a sok mell\u00e9khat\u00e1s ellen\u00e9re sz\u00fcks\u00e9ge van k\u00fcl\u00f6nb\u00f6z\u0151 antiepileptikumokra.<\/p>\n\n\n\n

Motoric skills: <\/strong>Leo has the motoric skills of an average 3-6 months old baby. He cannot hold his head alone, cannot crawl, sit or walk. Sometimes he's hypotonic, sometimes hypertonic, sometimes it's a mix of both. He'll need a special wheelchair once he's old enough. Daily physical training is required to try improving his skills and also to prevent his condition from worsening due to lack of physical activity. <\/p>\n\n\n\n

Visual skills:<\/strong> As the condition also affects the part of the brain which is responsible for processing visual information, after some time, the optic nerve becomes damaged. Due to the genetic nature of the condition, medicinal\/surgical treatment is unfortunately not possible. Le\u00f3\u2019s eyes are light-sensitive, he feels most comfortable in a semi-dark or dark place. Even though he can see a bit, he does not primarily rely on his eyesight to discover the world around him. In fact, how much he can use his eyes often changes throughout the day - sometimes for the better, sometimes for the worse. Do not be surprised if he does not look directly into your eyes when you meet him, but do talk to him, say hello, and he will for sure know you are there. His hearing is outstanding, but similarly to other kids, it is often selective. :)<\/p>\n\n\n\n

Intellectual development:<\/strong> Le\u00f3 perceives what is happening around him, but due to his condition, he has limited ways to react. Crying and different motions are usually utilized to express his dissatisfaction; smiling, laughing and sighing are the signs of him enjoying what is happening. As he cannot express his needs through words, for someone meeting him for the first time, it can be a bit hard to understand what he wants. His hearing is very good, music is his favourite. He can smell, taste, recognize when he has been picked up, hugged or given a kiss. You cannot really test these things, but they do give the essence of life. <\/p>\n\n\n\n

Other symptoms:<\/strong><\/p>\n\n\n\n