Hi!

If you found this page, you've probably already heard of me: my name is Leó, and I was born with an extremely rare genetic condition in 2019 in Budapest. My condition has no name: it's categorized as genetic epilepsy and is currently untreatable. As of today, there are only 6 documented cases of this particular condition in the medial literature worldwide.

This website has the following purposes:

• To promote the foundation's main goal: improving the quality of life of myself and children with similar disabilities.
• Közelebb hozzuk azt, ami „mindig csak mással történik”: Bemutatjuk a kihívásokat és lehetőségeket egy ritka, súlyos betegséggel élő gyermek és családja életében.

You can find a short introduction to my condition , and how it defines my present and future. You can also read my story, and what is going on with me recently.